A Weston toddler needs to travel to America for potentially life-saving treatment for a rare disease.

But Nick Moss - who spoke to Nova Radio last June as he was preparing for a fund-raising trek to help three year old son Ethan - still needs to make nearly ninety thousand pounds.

Ethan is one of only about ten people in the UK who has lymphangiomatosis - a condition which causes internal cysts and terrible pain.

There's currently no cure and half of sufferers die before their teenage years.